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Oregon State Resources

State Agencies and Organizations

United States Senators
Honorable Gordon Smith (R)
404 Russell Senate Office Building
Washington, DC 20510
(202) 224-3753
(202) 224-3997 (Fax)
E-mail Web Form: http://gsmith.senate.gov/webform.htm
Web: http://gsmith.senate.gov
Honorable Ron Wyden (D)
230 Dirksen Senate Office Building
Washington, DC 20510
(202) 224-5244
(202) 228-2717 (Fax)
E-mail Web Form: http://wyden.senate.gov/contact.html
Web: http://wyden.senate.gov
United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).
Governor
Honorable Ted Kulongoski
160 State Capitol
900 Court Street
Salem, OR 97301-4047
(503) 378-4582; (503) 378-6827 (Fax)
Web: www.governor.state.or.us
Official State Web Site
Web: www.oregon.gov/
State Department of Education: Special Education
Nancy J. Latini, Ph.D., Associate Superintendent
Office of Student Learning and Partnerships
Department of Education
255 Capitol Street N.E.
Salem, OR 97310-0203
(503) 947-5600
E-mail: nancy.latini@state.or.us
Web: www.ode.state.or.us
State Coordinator for NCLB (No Child Left Behind)
Helen Maguire, Director
Educational Improvement and Innovation
Department of Education
255 Capitol Street N.E.
Salem, OR 97310-1300
(503) 947-5877
E-mail: helen.maguire@state.or.us
Web: www.ode.state.or.us
Programs for Infants and Toddlers with Disabilities: Ages Birth through 5
Nancy Latini, Interim Director
Early Intervention/Early Childhood Special Education Department
Office of Special Education
Department of Education
255 Capitol Street N.E.
Salem, OR 97310-0203
(503) 947-5600
Web: www.ode.state.or.us
State Vocational Rehabilitation Agency
Stephaine Parrish-Taylor, Administrator
Office of Vocational Rehabilitation Services
Department of Human Services
Children, Adults & Families Division
500 Summer Street N.E., E87
Salem, OR 97301-1120
(503) 945-5880 (V); (503) 945-5894 (TTY)
Web: www.oregon.gov/dhs
Coordinator for Transition Services
Jackie Burr, Secondary Transition Specialist
Office of Student Learning & Partnerships
Special Education Unit
Department of Education
255 Capitol Street N.E.
Salem, OR 97310 
(503) 947-5639
E-mail: jackie.burr@state.or.us
Web: www.ode.state.or.us

State Mental Health Agency
Bob Nikkel, Assistant Director
Addictions in Mental Health Division
500 Summer Street, N.E., E86
Salem, OR 97301-1118
(503) 945-9704
Web:

State Mental Health Representative for Children and Youth
Bill Bouska, MPA, Manager
Child and Adolescent Mental Health Services
Addictions and Mental Health Division (AMH)
500 Summer Street, N.E., E86
Salem, OR 97309
(503) 945-9717
E-mail: bill.bouska@state.or.us
Web: www.dhs.state.or.us/mentalhealth

Councils on Developmental Disabilities
Bill Lynch, Executive Director
Oregon Council on Developmental Disabilities
540 24th Place N.E.
Salem, OR 97301-4517
(503) 945-9941; (800) 292-4154 (in OR)
E-mail: OCDD@ocdd.org
Web: www.ocdd.org
 

Protection and Advocacy Agency
Robert Joondeph, Executive Director
Oregon Advocacy Center
620 S.W. 5th Avenue, Suite 500
Portland, OR 97204-1428
(503) 243-2081; (503) 323-9161 (TTY)
(800) 452-1694
E-mail: welcome@oradvocacy.org
Web: www.oradvocacy.org/

Programs for Children with Special Health Care Needs
Brian Rogers, M.D., Director
Child Development and Rehabilitation Center
Oregon Health & Science University
P.O. Box 574
Portland, OR 97207-0574
(503) 494-8362
Web: http://cdrc.ohsu.edu/

State CHIP Program
(health care for low-income uninsured children)
Oregon SCHIP
Oregon Department of Human Services
Health Services: Office of Medical Assistance Programs
500 Summer Street, N.E. E49
Salem, OR 97301
(503) 945-5772; (800) 527-5772
(800) 375-2863
Web: State Chip Program

Programs for Children and Youth who are Blind or Visually Impaired or Deaf-Blind
Jay Gense, Director
Regional Programs for Low Incidence Disabilities
Department of Education
255 Capitol Street, NE
Salem, OR 97310-0203
(503) 947-5760
Web: www.ode.state.or.us

Vocational Rehabilitation Programs for Youth and Adults who are Blind, Visually Impaired or Deaf-Blind
Linda Mock, Administrator
Oregon Commission for the Blind
535 S.E. 12th Avenue
Portland, OR 97214
(971) 673-1588; (888) 202-5463
E-mail: ocbmail@state.or.us
Web:

Programs for Children and Youth who are Deaf or Hard of Hearing
Nancy Groff, Program Coordinator
Deaf and Hard of Hearing Access Program
Oregon Disabilities Commission
1257 Ferry Street S.E.
Salem, OR 97301-4278
(503) 378-3142 (V/TTY); (503) 378-5478 (TTY)
(800) 358-3117 (V/TTY, in OR)
(800) 521-9615 (V/TTY, in OR)
E-mail: nancy.groff@state.or.us
Web: www.odc.state.or.us/dhhap/index.htm

Telecommunications Relay Services for Individuals who are Deaf, Hard of Hearing, or with Speech Impairments
(800) 735-1232 (V)
(800) 735-3250 (VCO)
(800) 735-2900 (TTY); 711 (TTY)
(800) 735-0644 (ASCII)
(800) 735-7525 (Speech to Speech)
(800) 735-3896 (Spanish)
(900) 568-3323 (900 Services)

Regional ADA & IT Technical Assistance Center
Don Brandon, Center Director
Kathe Matrone, Center Coordinator
DBTAC Northwest: ADA Center
Western Washington Universtiy-CCER
6912 220th Street, S.W. #105
Mountlake Terrace, WA 98043
(425) 248-2480 (TTY); (800) 949-4232 (V/TTY)
E-mail: dbtacnw@wwu.edu
Web: www.dbtacnorthwest.org

University Centers for Excellence in Developmental Disabilities
Hill M. Walker, Co-Director
Jeff Sprague, Co-Director
Center on Human Development
University of Oregon
901 E. 18th Avenue, Room 350
Eugene, OR 97403
(541) 346-3591
Web: http://darkwing.uoregon.edu/~ivdb

Gloria L. Krahn, Director
Oregon Institute on Disability and Development
Oregon Health & Science University

P.O. Box 574
Portland, OR 97207-0574
(503) 494-8364; (800) 452-3563
(503) 494-8095 (TTY)
E-mail: krahng@ohsu.edu
Web: www.oidd.org

Technology-Related Assistance
Laurie Brooks, President
Access Technologies, Inc.
3070 Lancaster Drive N.E.
Salem, OR 97305
(503) 361-1201; (800) 677-7512 (V/TTY)
E-mail: info@accesstechnologiesinc.org
Web: www.accesstechnologiesinc.org

State Mediation System
Valerie Miller, Coordinator
Office of Student Learning and Partnerships
Department of Education
255 Capitol Street N.E.
Salem, OR 97310-0203
(503) 947-5705
E-mail: valerie.miller@state.or.us
Web: www.ode.state.or.us/

Special Format Library
Oregon State Library
Talking Book and Braille Services
250 Winter Street NE
Salem, OR 97301-3950
(503) 378-3849; (800) 452-0292
E-mail: tbabs.info@state.or.us
Web: http://tbabs.org

OFFICE OF STATE COORDINATOR OF VOCATIONAL
EDUCATION FOR STUDENTS WITH DISABILITIES

Holly Miles, Data Grants Team Coordinator
Office of Professional Technical Education
OR Department of Education
255 Capitol Street, N.E.
Salem, OR 97310-0203
(503) 378-3584
E-mail: holly.miles@state.or.us

OREGON OFFICE OF MEDICAL ASSISTANCE PROGRAMS

(a program of the Oregon Department of Human Services)
500 Summer Street, NE - Salem, OR 97310-1016
(503) 945-5772 or 1-800-527-5772 - TDD: 1-800-365-8135
e-mail: omap.info@state.or.us
Medical assitance programs

 

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
E-mail: mail@add.org
Web: www.add.org
 

Autism
To identify an autism group in your state, contact:
 

Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Jay Gense, Director
Regional Programs for Low Incidence Disabilities
State Services for Autism
Department of Education
255 Capitol Street, NE
Salem, OR 97310-0203
(503) 947-5760
Web: www.ode.state.or.us

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org
STATE AGENCY FOR THE VISUALLY IMPAIRED

Charles E. Young, Administrator
Oregon Commission for the Blind
535 SE 12th Avenue
Portland, OR 97214
(503) 731-3221; (800) 202-5463
E-mail: charles.young@state.or.us
Web: www.CFB.state.or.us

PROGRAMS FOR CHILDREN AND YOUTH
WHO ARE DEAF OR HARD OF HEARING

Thomas J. Davis, State Coordinator
Deaf and Hearing Impaired Access Program
Oregon Disabilities Commission
1257 Ferry Street, SE
Salem, OR 97310
(503) 378-3142 (V/TTY)
(800) 358-3117 (V/TTY, in OR)
(800) 521-9615 (V/TTY, in OR)
E-mail: tj.x.davis@state.or.us

Brain Injury
Sherry Stock, Executive Director
Brain Injury Association of Oregon
2145 N.W. Overton Street
Portland, OR 97210
(503) 413-7707; (503) 740-3155
E-mail: sherry@biaoregon.org
E-mail: biaor@biaoregon.org
Web: www.biaoregon.org

The Oregon Brain Injury Resource Network
345 N. Monmouth Avenue
Monmouth, OR 97361
(503) 413-7707; (877) 872-7246
E-mail: tbi@wou.edu
Web: www.tr.wou.edu/tbi

Cerebral Palsy
Bud Thoune, Executive Director
United Cerebral Palsy of Oregon and Southwest Washington
11731 NE Glenn Widing Drive
Portland, OR 97220
(503) 777-4167
E-mail: bthoune@ucpaorwa.org
Web: www.ucpaorwa.org

Epilepsy
Brent Hermann, President/CEO
Epilepsy Foundation of Northwest
2311 N. 45th Street, #134
Seattle, WA 98103
(206) 547-4551
E-mail: mail@epilepsynw.org
Web: www.epilepsyoregon.org

Intellectual and Developmental Disabilities
Marcie Ingledue, Executive Director
The Arc of Oregon
1745 State Street
Salem, OR 97301
(503) 581-2726; (877) 581-2726 (toll-free)
E-mail: info@arcoregon.org
Web: www.arcoregon.org/

Learning Disabilities
Myrna Soule, President
Learning Disabilities Association of Oregon
P.O. Box 34
Marylhurst, OR 97036
(503) 697-6213
E-mail: mtsoule@ix.netcom.com
Web: www.ldaor.org

Mental Health
Beckie Child, President
Mental Health Association of Oregon (MHAO)
Regional Research Institute (RRI)
Portland State University
1600 SW 4th Avenue, Suite 900
P.O. Box 751
Portland, OR 97207-0751
(503) 725-5953
E-mail: beckiec@pdx.edu

Dave Gallison, Executive Director
NAMI Oregon
3550 S.E. Woodward
Portland, OR 97202-1552
(503) 230-8009; (800) 343-6264 (in OR)
E-mail: namioregon@qwest.net
Web: www.nami.org/oregon

Jeanne Schulz, Executive Director
Oregon Family Support Network, Inc.
2411 Martin Luther King Jr. Boulevard, Suite 274
Eugene, OR 97401
(541) 342-2876; (800) 323-8521
Web: www.ofsn.org

Speech, Language, and Hearing
Janet Brockman, President
The Oregon Speech-Language and Hearing Association
P.O. Box 523
Salem, OR 97308
(503) 370-7019
E-mail: assoc@wvi.com
Web: www.oregonspeechandhearing.org/

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Janice Richards, Executive Director
Oregon Parent Training and Information Center
(formerly known as COPE)
2295 Liberty Street, N.E.
Salem, OR 97301
(503) 581-8156; (888) 505-2673 (in OR)
E-mail: info@orpti.org
Web: www.orpti.org

Community Parent Resource Center
Oregon FIRST
Family Information Referral Services and Trainings
830 NE 47th Avenue
Portland, OR 97213
(503) 215-2268
E-mail: info@orfirst.org
Web: www.orfirst.org

Parent Teacher Association (PTA)
Beth Nead, President
Oregon PTA
P.O. Box 4569
Portland, OR 97208-4569
(503) 234-3928
E-mail: or_office@pta.org
E-mail: or_pres@pta.org
Web: www.oregonpta.org

Parent-To-Parent
Contact Parent Training and Information Center listed above

Other Disability Organizations

J. David Cheveallier, President/CEO
Easter Seals Oregon
5757 S.W. Macadam Avenue
Portland, OR 97239
(503) 228-5108
E-mail: info@or.easterseals.com
Web: www.or.easterseals.com
INDEPENDENT LIVING
Independent Living House

 

 

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:

Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contact:

National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(202) 207-0334 (V); (202) 207-0340 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

OREGON RESPITE PROGRAMS

Respite Locator Service - (800) 773-5433

Oregon Respite Programs

 

 FREE MEDICATION PROGRAMS (or almost free!!!)

NAMI-medication program

DSI On-line

Free medication available

 

REGIONAL ADA TECHNICAL ASSISTANCE AGENCY

Toby Olson, Project Director
Northwest Disability and Business Technical Assistance Center
WA State Governor's Committee on Disability Issue & Employment
P.O. Box 9046
Olympia, WA 98507-9046
(360) 438-4116 (V/TTY)
Web: www.wata.org/NWD/

 

OREGON CHILDRENS HOSPITALS

Shriners Hospital for Children Portland
310 SW Sam Jackson Park Road
Portland, Oregon 97201-3095
(503) 241-5090
Shriners Hospitals for Children

Doernbecher Children's Hospital
3181 SW Sam Jackson Park Rd. , Portland , OR 97201
Phone: (503) 494-8811
Doernbecher Children's Hospital

 

Bonnie Parypa, Program Manager
NAMI-Oregon
3300 Market Street, NE, Suite 11
Salem, OR 97301
(503) 370-7774; (800) 343-6264
E-mail: cloud51@aol.com


Mental Retardation
Paula Blue-Moore, Executive Director
The Arc of Oregon
1745 State Street
Salem, OR 97301
(503) 581-2726; (877) 581-2726 (toll-free)
E-mail: arcoforg@open.org
Web: www.open.org/arcoforg

Legacy Emanuel Children's Hospital
2801 N Gantenbein Ave , Portland , OR 97227
Phone: (503) 413-2500
Legacy Emanuel Children's Hospital

TRANSPORTATION

Action Accessible Travel
Web: Project ACTION Accessible Travel Database

PROTECTION AND ADVOCACY AGENCY

Robert Joondeph, Executive Director
Oregon Advocacy Center
620 SW 5th Avenue, Fifth Floor
Portland, OR 97204-1428
(503) 243-2081; (503) 323-9161 (TTY)
E-mail: oradvocacy@aol.com

 

 

 The Cerebral Palsy Network©1997/2008. All graphics are the exclusive property of CPN, unless otherwise indicated. Contact Cerebral Palsy Network   for further information. Last updated 05/26/08